We got there right on time at 8 am, checked in and then were escorted to the GI and Nutrition clinic on the 2nd floor. I have to admit it was a pretty nice facility, there were cool paintings on the wall, a flat screen TV (with nothing on of course) and plenty of comfortable seating. I filled out my paperwork while trying to keep my daughter from wandering, which isn't exactly easy when you're filling out paperwork. We didn't wait long at all, I think we sat there maybe 10 minutes at most before we got called in.
So the nurse does the usual, weighs her, checks her height, and attempted to get her blood pressure... nice try lady my daughter is a wiggler. And then we were taken into a room to wait for her doctor, Dr. Liu. I was expecting an older man with an accent like her primary pediatrician, but about 5 minutes later walks in a younger man probably early 30's no accent and VERY friendly.
We talked about what had been going on (the chronic diarrhea for over 2 and half months) her diet, family history of illnesses, you know the usual. Then he tried to examine her which is pretty difficult because she is quite strong and wiggles a lot. Then we get down to the whole purpose of her visit, you know the diagnosis. Of course it's impossible to know considering no tests were performed besides fecal tests, so without labwork, he tells me it could be a food allergy. She could be allergic to milk but it's not likely considering she has been drinking it for awhile.
Then the worst of them all, she could possibly have an autoimmune disease called Celiac Disease, something I knew nothing about but anytime I hear "disease" I start to freak out. He tries to reassure by saying that she's kind of young to have it. I didn't even know what it was nor had I even heard of it so I just assume it's probably true. He ended up requesting lab work to test her for different things, and we will follow up in early November.
Now here's the really stupid part, instead of getting the labwork done at Children's Hospital which would be the obvious thing to do, I have to schedule an appointment with my primary pediatrician and get the labwork requested by him, because my insurance company only authorized an office consultation. So basically if I had it done there I would have to foot the bill. AGAIN THANK YOU PUBLIC HEALTHCARE SYSTEM.. you have truly inconvenienced me once again.
The nightmare never seems to end, and now I have to be concerned about her having Celiac Disease, which I googled on my phone as soon as I left, it basically is an is a condition that damages the lining of the small intestine and prevents it from absorbing parts of food that are important for staying healthy. The damage is due to a reaction to eating gluten, which is found in wheat, barley, rye, and possibly oats. (Yes I took that from the A.D.A.M. medical encyclopedia) So if she has it everyone has to switch to a gluten free diet.
I'm going to be really bummed if she has it, because there are so many foods she loves that she'll have to give up but I guess on the upside if they find it earlier switching to this diet won't be as hard for her because she's only 15 months old and doesn't understand. I think it will be harder for me personally than her but as a parent you make sacrifices for your children and I'm 100% willing to do it for her, besides hearing that she could possibly have Celiac Disease makes me wonder if I have it, I've had GI problems in the past and it's hereditary so maybe I should get tested too.
Bottom line, I'm no closer than I was yesterday to a diagnosis, instead I'm now worried more and even more frustrated with the public health system.